Tag Archives: epilepsy

I heard from one of my research friends that there is promising news coming out of France about TNA alpha inhibitors and their success in stopping RE.  TNA alpha inhibitors are a class of drugs that are currently used to treat … Continue reading

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A year ago a terrible tragedy happened to a very special person, Pouneh Bahri.  After enduring the hardship and tragedy of Rasmussen’s encephalitis, and then striving to find her own way in life, she was accidentally killed in a bus accident. … Continue reading

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I continue to be contacted by parents from every corner of the world desperately seeking help for their children.  Most recently the e-mails have come from Israel, Rumania, and in the States from California.  Many of the e-mails ask if there … Continue reading

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We are in the early stages of looking at post high school alternatives and it is a real challenge to navigate the labyrinth of schools available to young adults with learning and physical disabilities.  Many schools offer programs that assist individuals … Continue reading

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I am delighted to report that the scientific notes from the latest research conference held two months ago on the campus of UCLA are now available.  These notes represent the latest science and research related to rasmussen’s.  I encourage you … Continue reading

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On March 13th and 14th the Blue Wave Football Team will compete against rival Brien McMahon in a lift-a-thon with a twist. The teams will lift weights, lots of them, but more importantly, they will lift spirits and improve lives … Continue reading

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Click on the  highlighted link to see our story which made the cover of the December issue of the Epilepsia Journal:  My Life With RE.  Straight from the heart…. Just got back from the American Epilepsy Society Meeting in Washington DC.  Terrific two days of meetings topped … Continue reading

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I have frequently written about  how fortunate we are to live during the time of the internet and social media where we are empowered to reach across the globe and connect with one another.  We are blessed today to be able to learn from … Continue reading

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A mom of a child with rasmussens recently asked me if I refer to Grace as still having rasmussens even though Grace is post-hemispherectomy and seizure free.  This question made me realize that many families that are post-hemispherectomy and seizure free … Continue reading

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We continue our preparation for the February fundraiser.  We do need your continued support if we are to help families impacted by rasmussen’s as well as continue to fund path breaking research projects.  This year Dr. Gary Mathern of UCLA … Continue reading

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