Tag Archives: Rasmussens Encephalitis

I heard from one of my research friends that there is promising news coming out of France about TNA alpha inhibitors and their success in stopping RE.  TNA alpha inhibitors are a class of drugs that are currently used to treat … Continue reading

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It is with deep sadness that we note the passing of a good friend, Dr. Carol Kruse.  Carol was a leader in researching the underlying mechanisms of RE and one of my scientific mentors who encouraged me on my quest … Continue reading

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A year ago a terrible tragedy happened to a very special person, Pouneh Bahri.  After enduring the hardship and tragedy of Rasmussen’s encephalitis, and then striving to find her own way in life, she was accidentally killed in a bus accident. … Continue reading

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  On March 13th, the annual Lifting For Grace fundraising event will take place in our home town at Darien High School.  The event is focused on raising awareness for Rasmussen’s encephalitis as well as funds for our research programs … Continue reading

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We are in the early stages of looking at post high school alternatives and it is a real challenge to navigate the labyrinth of schools available to young adults with learning and physical disabilities.  Many schools offer programs that assist individuals … Continue reading

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I hope you are doing well.  I wanted to follow-up on a letter I sent you to let you know about some of the progress we are making with the RE Children’s Project (www.rechildrens.org) in the ongoing effort to find … Continue reading

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I am delighted to report that the scientific notes from the latest research conference held two months ago on the campus of UCLA are now available.  These notes represent the latest science and research related to rasmussen’s.  I encourage you … Continue reading

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I have frequently written about  how fortunate we are to live during the time of the internet and social media where we are empowered to reach across the globe and connect with one another.  We are blessed today to be able to learn from … Continue reading

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This week we added a reference library for RE to the website.  The library has over 300 references to scholarly publications relating to RE categorized by relevant topics.  Go to the home page of this website to learn more about how … Continue reading

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This week we transferred fresh tissue following a hemispherectomy from Duke University to UCLA.  This case was a great example of the entire Rasmussen’s community pulling together for the greater good of advancing research into RE.  I was initially contacted by a … Continue reading

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