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Grace's Story

Watch this video and see the inspiration behind the RE Children's Project!

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Research coodinator to be hired to manage tissue repository

The RE Children's Project to hire a research coordinator to advance colloborative efforts of the RE Children's Research Consortium

A research coodinator will be hired under the leadership and guidance of Dr.Carlos Pardo of Johns Hopkins Univeristy School of Medicine.

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The RE Children’s Project is a 501 (c) (3) TAX ID - (27-1377807) organization devoted to Rasmussen’s Encephalitis, most importantly the search to find a cure. Rasmussen’s Encephalitis is a rare neurological condition that impacts children primarily under 13 years of age rendering them paralyzed on one side of their body and experiencing incurable epilepsy.  In many cases, the removal of ½ of the brain is the only solution to stop the uncontrollable seizures.

The RE Children's Project
79 Christie Hill Road • Darien, CT 06820
swohlberg@rechildrens.com